Help for Harry

Hi everyone,

We are the parents of Harry who is our four year old son who has a very rare genetic disorder called MSL3 syndrome. He is currently the 1st  child in Ireland  diagnosed with this condition and there is less than 50 children worldwide.

This syndrome includes global development     delay, neonatal hypotonia, delayed language   development , intellectual disability, delayed     ability to walk and progressive spasticity to name but a few . Because it’s such a rare syndrome and only newly discovered in 2018 there  isn’t much information and very hard to know  exactly what the developmental progress will  be for the future .

We have decided to try to raise funds for                  intensive private therapies for Harry which include ,physio therapy, Occupational therapy speech and language therapy to name a few , while also help  fund research  studies for this condition. Intensive therapies are highly recommended by Harrys specialists, doctors and researchers in Germany.  This is a life long disorder so getting as much therapies and help now is of vital importance to help Harry to progress and hopefully gain a better quality of life .

We would really appreciate any help or 
donations towards Harry’s cause. 

Thank you.