Remembering Nikita for Rare Diseases Ireland

Today I am running 52km around a small green in my estate Lakeview Castlebar in memory of our beautiful young neighbour Nikita O Malley who passed away earlier this year. Our Lakeview Community is fundraising for Rare Diseases Ireland. Rare Diseases Ireland does not receive any Government, Department of Health or HSE funding for its work. RDI  has played an active role in advocating for key European policy achievements that have improved the lives of those affected by rare diseases in Ireland and across Europe. Today we will come together as a community to think of Nikita and raise some vital funds for this important cause.
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