My name is Michael Gallagher, and I am going to complete a cycle in memory of my niece Tilly Gallagher. Tilly was born on the 23rd of February 2018, she was born with Down syndrome (Trisomy 21). Like many others, with and without Trisomy 21, Tilly had a hole in her heart and needed an operation to fix this. Unfortunately, 10 days before her operation, Tilly caught a respiratory infection and she passed away on the 30th of June 2018. Tilly was 4 months old. She is missed by all of her family.
The Tilly memorial charity cycle, will involve me cycling solo, the length and width of Ireland over a 5 day period. Cycling the length 620km from Mizen Head to Malin head in 3 days and the width of Ireland 320km Dublin to Achill in 2 days. A total of 950km. The proposed cycle details are as follows:
Day 1 – 14th June – Mizzen Head – Limerick -215km
Day 2 – 15th June – Limerick – Dowra Co Cavan – 225km
Day 3 – 16th June – Dowra – Malin Head– 180km (travel by support vehicle to Dublin)
Day 4 – 17th June – Dublin – Frenchpark Co Roscommon – 190Km
Day 5 – 18th June – Frenchpark – Achill – 140
#Tillyscycle Social Media
About Tilly (In the words of her Mum, Dad & 2 Sisters - Pictured Below)
“Matilda (Tilly) Mary Gallagher was born on the 23rd of Feb 2018 in Perth Children’s Hospital, Perth, Australia. She was such a blessing and a joy. The name Matilda means “battle strong” and she certainly lived up to that name. She was brave and determined, yet sweet and content to be held close for hours. We had looked forward to watching her grow and take on the world as only she could. We loved seeing Tilly with her sisters as they gently hugged, kissed and sang to her.
For the 18 weeks that we had her with us she enriched all of our lives and taught us what it is to be brave, strong and content in each moment. She taught us how to dig in and battle to the end, how precious life is, how we need to savour each moment.
So many people helped Tilly; and us as a family; over the months Tilly was sick, and in the years that have followed. We are so lucky to have fantastic family and friends who have rallied behind us when we needed support. We are forever thankful to the wonderful staff in Perth Children Hospital and we will never forget the compassion and kindness showed by all of these people.
Tilly’s cycle, 3 years after her passing, highlights the lasting impact Tilly has had on our family. In remembering Tilly, Michael is helping so many others. We are so proud of Michael and the massive effort he is putting in, on and off the road. Tilly would be so proud of her uncle.”
Down Syndrome West
All donations to the Tilly Memorial Charity Cycle will go towards Down Syndrome Ireland West regional Centre that is currently being developed in Swinford , Co Mayo.
Máirt Campbell (R.I.P.) left his home in Swinford Co Mayo to Down Syndrome Ireland so that it could be used to provide services and support to the Down syndrome community. It was his wish that the house would be used to provide the necessary and vital supports needed and to provide a focal point that people could use to advance the outcomes for people with Trisomy 21. Down Syndrome Ireland wish to use Máirt’s legacy as intended, and develop the house into a setting that can be used by people in the west.
See additional information on Máirt Campbell and the centre in links attached.
Or on social media
The centre will be the regional centre for Down Syndrome Ireland members in the west. The branches in Mayo, Roscommon, Sligo and Leitrim and it is hoped that Galway and Donegal branches will make use of the facility. The centre will consist of a meeting/training space, also 2 treatment rooms that could be used for physiotherapy/ occupational therapy, a speech and language room plus a sensory room and a fully accessible playground. See attached link of plans and photos of work completed to date.
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