Alex is an identical twin brother to Kyron (RIP). Even before birth they suffered from TTTS, this is Twin-to-twin transfusion syndrome (TTTS) it is a rare pregnancy condition affecting identical twins or other multiples. TTTS occurs in pregnancies where twins share one placenta (afterbirth) and a network of blood vessels that supply oxygen and nutrients essential for development in the womb. This led to surgery being carried out while they were both still in the womb. In complicated cases of twin-to-twin transfusion syndrome (TTTS), minimally invasive surgery can offer the best chance of having two healthy babies. This surgery, known as endoscopic laser ablation, is performed in utero and can correct the blood-sharing imbalance caused by TTTS.
Unfortunately, the surgery was unsuccessful. A short while later both Alex and Kyron’s mam Karen went into premature labour at 26 weeks (13 weeks before her due date) The medical staff had to perform an emergency caesarean, sadly Kyron had already passed away and Alex was very sick and premature, weighing in at 2ILBS 3OZS, he was brought straight to ICU and neither parent could get to hold their precious child, all while dealing with the passing of his twin brother. Alex had a very damaged heart, the causes of myocardial infarction, or a heart attack, which all involve some kind of blockage of one or more of the coronary arteries. The coronary arteries provide the heart with oxygenated blood, and if they become blocked, the heart will become oxygen starved, killing heart tissue and causing a heart attack.
While still in ICU, Alex suffered a further 3 heart attacks, and despite everything the medical staff tried to do, the family were told to prepare themselves for the worse. This was heart-breaking for the family especially while still dealing with the loss of their other twin.
Despite all the odds stacked against him Alex recovered enough to be allowed home from hospital, (this is what makes him a miracle child). In his very short life so far Alex has endured numerous setbacks leading to long periods of time spent in hospital, he is on heart medication, his breathing and digestion suffer, as a consequence of his heart condition. Alex has shown incredible strength and resilience to get to where he is now.
Sadly, it has now come to the stage that Alex’s heart is no longer able to sustain him without having heart surgery. He is in heart failure.
Alex’s parents, Karen and Andy, will need to travel to Great Ormond St Hospital in London in the coming months with Alex. Medical staff are going to be preforming surgery to repair the mitral value, this is a temporary fix as Alex will still need full heart surgery. If the medical staff are unable to do this temporary fix, then Alex and his parents will need to stay in the UK indefinitely. Alex will leave behind his baby sister Amelia (17 months old).
We their family are looking to fundraise to help the family cover the expenses they incur while in the UK with Alex.
Anything left over will be donated to both The Irish Heart Foundation and Crumlin Hospital for Sick Children.
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more